Home U.K Nine-year-old schoolgirl with rare condition given life-changing 'gift of walking'

Nine-year-old schoolgirl with rare condition given life-changing 'gift of walking'


Nine-year-old Meghan Kewley has a rare condition called cardiofaciocutaneous syndrome and regularly suffers from seizures. Megan along with her family have been shielding since March 2020 due to the coronavirus pandemic. But now the little girl has been given a walking frame that allows her to go outside and exercise. 

Meghan’s dad Michael said it was very emotional to see his daughter take her first steps with the walker. 

He told Cheshire Live: “People have been coming up to us and saying how smiley and happy Meghan is.

“Meghan making other people happy makes us happy.

“People have said they didn’t realise we lived here as she was always in the house because of COVID-19 and now they’re seeing her out.

“Seeing my little girl do that was very emotional. I have never seen my daughter do that before.

“We can’t thank the Steve Morgan Foundation enough. They have given Meghan the gift of walking.”

Michael said: “Meghan’s routine did change quite a lot, she couldn’t go to school and didn’t understand why.

“During the first few months in the night, she couldn’t sleep and was very agitated.

“Meghan being stuck with two adults all the time was also a concern for us. When Meghan has had physio to the home she has not been able to see them because of the masks.

“But she goes through so much and always has a smile on her face.”

The family were awarded the walking frame from the Steve Morgan Foundation after being previously denied funding to get one.

Meghan’s mum and dad, Amanda and Michael said seeing Meghan so happy and being able to see other people from a distance after being in lockdown so long has been ‘priceless.’

Additional reporting Olivia Williams. 

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